Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Welcome to MPS

The Society for Mucopolysaccharide Diseases (the MPS Society) is a voluntary support group founded in 1982, which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases including Fabry Disease, their families, carers and professionals. Membership is open to individuals who are resident in the United Kingdom and who meet the agreed criteria. The Society is a registered charity entirely supported by voluntary donations and fundraising and is managed by the members themselves. The Society has the following aims:

  • To act as a support network for those affected by MPS & Related Diseases
  • To bring about more public awareness of MPS & Related Diseases
  • To promote and support research into MPS & Related Diseases

Read more about us...

Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Jeans for Genes
Jeans for Genes is a UK Children’s Charity that aims to change the world for children with genetic disorders.

Jeans for Genes is an annual fundraising event and this year it takes place on 1 October 2010. Ask your colleagues at work or the children at school to wear their jeans on the Day and make a donation. Visit www.jeansforgenesday.com to sign up for a FREE fundraising pack.

Jeans for Genes provides funding for the care and support of children with genetic disorders. They also help to fund research into genetics and the development of effective treatments and cures. Each year they offer funding to a range of charities.

 

Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Volunteering
Looking for a fun and rewarding challenge where you could also pick up new skills or gain valuable work experience? We are always looking for childcare volunteers to support our children and adults at events so why not give it a go!
Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
How your money helps
Your financial support is vital to us. Find out how we spend your money to support those who need us.
Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Donate Now!

Every penny helps us to support those affected by MPS and related diseases. We are dependent on donations from individuals, companies and organisations. You can make a difference!

Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Latest News
Fabrazyme Supply

Update on Fabrazyme Supply